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DUK10075194_117
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge works on a puzzle during a Sunday lunch at his family’s home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272611
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DUK10075194_116
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge eats yogurt as he peels carrots for lunch at his home in Puebla, Mexico on April 23, 2017. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272590
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DUK10075194_107
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge plays bocce ball in Puebla, Mexico on April 23, 2017. He is part of a sports team for people with disabilities. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272548
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DUK10075194_083
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita gets upset because she wants to be served her meal five minutes before the scheduled time at her home in Mexico City, Mexico on April 19, 2017. Because she had bariatric surgery in May 2012, her access to food must be strictly supervised and limited. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272533
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DUK10075194_075
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
This 1993 family photo shows Lupita at age 20. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272531
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DUK10075194_054
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita poses for a portrait in her bedroom at her home in Mexico City, Mexico on April 19, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272525
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DUK10075194_043
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita poses for a portrait at her home in Mexico City, Mexico on April 19, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272524
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DUK10075194_007
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
A family photo from 1982 shows Lupita at age 9 with her sisters Gaby and Olga and the family dog. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272530
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DUK10075194_104
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272516
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DUK10075194_081
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
An annual meeting organized by Fundación María José, the Prader-Willi association of Mexico, in Mexico City, Mexico on April 9, 2017. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272519
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DUK10075194_102
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats a snack served by her sister Olga at their home in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272506
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DUK10075194_050
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita practices Qi Gong with her teacher in Mexico City, Mexico on April 5, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272504
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DUK10075194_105
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita and her boyfriend Jorge walk on the rooftop terrace of her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272500
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DUK10075194_096
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita and her boyfriend Jorge rest on the rooftop terrace of her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272498
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DUK10075194_082
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272483
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DUK10075194_067
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita embraces her boyfriend Jorge, who has come to celebrate his 34th birthday at her home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, 43, and Jorge Antonio Moreno Gaytán, 34, both diagnosed with Prader-Willi syndrome, have been in a relationship for 11 years. They met at an annual meeting organized by the Mexican Prader-Willi Association Fundación María José in Pachuca, Mexico. They call each other daily but only see each other three to four times a year. They dream about getting married one day. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272485
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DUK10075194_026
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita eats breakfast with her sister Olga at their home in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272473
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DUK10075194_002
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Lupita stands at the door of her house anxiously waiting for her boyfriend Jorge to arrive in Mexico City, Mexico on March 31, 2017. Maria Guadalupe Pilar Saucedo Granda, also known as ‘Lupita’, a 43-year-old Mexican woman, lives with her sister Olga during the week and with her sister Gabriela on weekends, in Mexico City. She was diagnosed with Prader-Willi syndrome (PWS) as a newborn. In 2011, she weighed 123 kilos (271 pounds) and was morbidly obese. Because of the higher risks, she is one of the few Mexican patients with PWS to have received bariatric surgery in May 2012. Bariatric surgery is usually not recommended for PWS patients, as it requires constant supervision and control from their caretakers. Lupita follows a well-balanced diet with rigorous supervision and eats regularly scheduled meals. Today she weighs 60 kilos (132 pounds). Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272479
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DUK10075194_095
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli brushes her teeth at her home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272432
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DUK10075194_085
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli at a public swimming pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272436
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DUK10075194_068
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli takes a nap at her home in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272469
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DUK10075194_056
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli swims with her mother at a public pool in Mexico City, Mexico on March 29, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272440
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli gets upset and clutches a pot of popcorn that she grabbed from the refrigerator before her mother locked it shut at their home in Mexico City, Mexico on March 29, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272454
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli and her mother spend a Sunday afternoon at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272424
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli and her mother spend a Sunday afternoon at Chapultepec Park, also known as Bosque de Chapultepec, in Mexico City, Mexico on March 26, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272423
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli poses for a portrait while sitting on her bed, which is located next to a locked refrigerator in her two-room home in Mexico City, Mexico on March 23, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272411
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli poses for a portrait while sitting on her bed, which is located next to a locked refrigerator in her two-room home in Mexico City, Mexico on March 23, 2017. Because of her condition, her mother keeps the refrigerator and kitchen under lock and key. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272412
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Citlalli embraces her mother at their home in Mexico City, Mexico on March 23, 2017. Delia Citlalli Pineda Corzo, a 21-year-old Mexican girl, lives with her 42-year-old mother Diana Cristina Corzo Zárate in a two-room apartment in Mexico City. She was diagnosed with Prader-Willi syndrome at age four. At age 15, doctors detected that she had diabetes. Citlalli weighs 106 kilos (233.6 pounds) and stands 150 centimeters (4 feet 11 inches). She has a BMI of 50.5, making her morbidly obese. She also suffers from sleep apnea. Citlalli lacks the faculty of speech and cannot read, but her mother says they have developed their own form of communication. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272415
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jose Angel Mendieta, a six-year-old Mexican boy, just received eye drops during an ophthalmology consultation at the Federico Gómez Children's Hospital in Mexico City, Mexico on March 15, 2017. Jose Angel weighs 47 kilos (103.5 pounds) and stands 119 centimeters (3 feet 11 inches). He was diagnosed with Prader-Willi syndrome at age four, a process that took over two years. He lives with his mother. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272405
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NEWS - Hillary Clinton: Lugenentzündung zwingt sie zu Wahlkampfpause
September 11, 2016 - New York, NY USA: Hillary Clinton had a medical issue when she fainted during a ceremony at Ground Zero commemorating the 9/11 attacks on World Trade Center. Afterwards she walked out of her daughter Chelsea's apartment and to a crowd and media on East 26th street in Manhattan. (John Roca/Polaris) (FOTO:DUKAS/POLARIS) *** Local Caption *** 05598672
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED L-R Kohen with baby sister Autumn Warner) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED L-R Autumn with parents Holly Striloff and Travis Warner.) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Holly and Travis with Autumn in a carrier) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Holly and Travis with Autumn in a carrier) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Holly and Travis with Autumn in a carrier) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED L-R Kohen with baby sister Autumn Warner) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Autumn with brother Kohen whilst being held by Dad Travis Warner) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Autumn Warner in the hsopital) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Autumn Warner in the hsopital) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED L-R Autumn with brother Kohen and Mother Holly) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED L-R Autumn with Dad Travis Warner) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Autumn with mother Holly in the hospital) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Autumn with mother Holly in the hospital) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Baby Autumn with her intestine's in a Silo Bag) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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SCHICKSALE - Ein Frühgeborenes überlebt, nachdem es mit Eingeweiden ausserhalb des Bauches geboren wurde
Holly Striloff / CATERS NEWS (PICTURED Baby Autumn with her intestine's in a Silo bag) A premature baby has defied the odds after being born with her intestines outside of her stomach. Autumn Warner, who is now four-months-old, was born six weeks early on July 5 by emergency c-section to medical lab assistant, Holly Striloff, 33, and her partner Travis Warner, 32, in Kamloops, Canada. The condition, gastroschisis, is a birth defect that causes a baby's intestines to form on the outside of the body and effects on average one out of 2500 babies born in a year. But thankfully doctors were able to save Autumn's life after feeding her intestines back into her body in an intense procedure. SEE CATERS COPY (FOTO: DUKAS/CATERSNEWS)
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge lies on a hospital bed during a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272662
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge is prepped to undergo a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome, independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272636
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REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge lies on a hospital bed during a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272648
(c) Dukas -
DUK10075194_008
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge is prepped to undergo a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome, independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272638
(c) Dukas -
DUK10075194_036
REPORTAGE - Mexiko: Leben mit dem Prader-Willi Syndrome
Jorge is prepped to undergo a polysomnographic examination at the Salvador Zubirán National Institute of Health Sciences and Nutrition in Mexico City, Mexico on May 31, 2017. Polysomnography (PSG), a type of sleep study, is a test used to diagnose sleep disorders. Sleep disturbance is common among patients with Prader-Willi syndrome, independent of age and weight. Jorge Antonio Moreno Gaytán, a 34-year-old Mexican man, lives with his parents in Puebla, Mexico. He was diagnosed with Prader-Willi syndrome at age seven. He weighs 136 kilos (300 pounds) and stands 152 centimeters (4 feet 12 inches). Jorge is in the process of getting bariatric surgery. As a teenager, he would pawn his siblings’ belongings in order to have money to buy food. He was also known to leave restaurants without paying. “Our worst enemy is hunger, it’s what will kill us”, Jorge says. He is now part of a sports team for people with disabilities. He has been in a relationship for 11 years with, Maria Guadalupe Pilar Saucedo Granda, known as “Lupita’, also diagnosed with Prader-Willi syndrome. Prader-Willi Syndrome (PWS) is a rare genetic disorder caused by an abnormality in chromosome 15. In newborns symptoms include weak muscle tone (hypotonia), poor appetite and slow development. In childhood the person experiences a sensation of constant hunger no matter how much he/she eats which often leads to obesity and Type 2 diabetes. There may also be mild to moderate intellectual impairment and behavioral problems. Physical characteristics include a narrow forehead, small hands and feet, short in stature, and light skin color. Prader-Willi syndrome has no known cure. However, with early diagnosis and treatment such as growth hormone therapy, the condition may improve. Strict food supervision is typically required. PWS affects an estimated 1 in 10,000 to 30,000 people worldwide. (Photo by Bénédicte Desrus/Sipa USA) *** Local Caption *** 21272652
(c) Dukas -
